Publications 2020

Vanem TT, Rand-Hendriksen S, Brunborg C, Geiran OR, Røe C (2020)
Health-related quality of life in Marfan syndrome: a 10-year follow-up
Health Qual Life Outcomes, 18 (1), 376
DOI 10.1186/s12955-020-01633-4, PubMed 33256748

Publications 2019

Böker T, Vanem TT, Pripp AH, Rand-Hendriksen S, Paus B, Smith HJ, Lundby R (2019)
Dural ectasia in Marfan syndrome and other hereditary connective tissue disorders: a 10-year follow-up study
Spine J, 19 (8), 1412-1421
DOI 10.1016/j.spinee.2019.04.010, PubMed 30998996

Vanem TT, Böker T, Sandvik GF, Kirkhus E, Smith HJ, Andersen K, Drolsum L, Lundby R, Røe C, Krohg-Sørensen K, Geiran OR, Paus B, Rand-Hendriksen S (2019)
Marfan syndrome: Evolving organ manifestations-A 10-year follow-up study
Am J Med Genet A, 182 (2), 397-408
DOI 10.1002/ajmg.a.61441, PubMed 31825148

von Kodolitsch Y, Demolder A, Girdauskas E, Kaemmerer H, Kornhuber K, Muino Mosquera L, Morris S, Neptune E, Pyeritz R, Rand-Hendriksen S, Rahman A, Riise N, Robert L, Staufenbiel I, Szöcs K, Vanem TT, Linke SJ, Vogler M, Yetman A, De Backer J (2019)
Features of Marfan syndrome not listed in the Ghent nosology - the dark side of the disease
Expert Rev Cardiovasc Ther, 17 (12), 883-915
DOI 10.1080/14779072.2019.1704625, PubMed 31829751

Publications 2018

Sandvik GF, Vanem TT, Rand-Hendriksen S, Cholidis S, Saethre M, Drolsum L (2018)
Ten-year reinvestigation of ocular manifestations in Marfan syndrome
Clin Exp Ophthalmol, 47 (2), 212-218
DOI 10.1111/ceo.13408, PubMed 30260057

Vanem TT, Geiran OR, Krohg-Sørensen K, Røe C, Paus B, Rand-Hendriksen S (2018)
Survival, causes of death, and cardiovascular events in patients with Marfan syndrome
Mol Genet Genomic Med, 6 (6), 1114-1123
DOI 10.1002/mgg3.489, PubMed 30393980